Susan Friedl

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U.K. patients describe Myalgic Encephalomyelitis (ME) or (ME/CFS)

*Often called chronic fatigue syndrome (CFS) or ME/CFS


Video by M.E. Action

Patients like these are why Dr. Gordon began research into chronic illness. Find out about our Science in Service of Humanity metabolomics research in CFS/ME. Read our published study, “Metabolic Features of Chronic Fatigue Syndrome,” watch for the next study to be published in the fall of 2017, sign up to participate in new research as a patient or a healthy control, and donate to support the work.

Evidence that CFS truly does deserve all three elements of its name has accumulated over the years but a definitive diagnostic test has remained elusive. Until, perhaps, now. For in this week’s Proceedings of the National Academy of Sciences Robert Naviaux of the University of California, San Diego, and his colleagues published evidence that the metabolisms of those diagnosed with CFS are all changing in the same way. Their data suggest it is this cellular response to CFS-triggering traumas, and not the way the response is set in motion, which should define the illness. They also show that this response produces a chemical signal that might be used for diagnosis.

The Economist

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Did you know: +300,000 per year get Lyme!

Chronic Lyme Disease Summit 2

Over 150 symptoms could point to Lyme disease–it’s a present-day epidemic that’s terribly difficult to diagnose! And, conventional medicine does not have an answer–join us for expert protocols that could radically improve the life of someone with Lyme!

Register free for The Chronic Lyme Disease Summit 2

WHY ATTEND?
Dr. Anderson will be speaking on Day 1, along with long time patient advocate Scott Forsgren, and the founder of the summit, Jay Davidson. Dr. Anderson will discuss the different types of Borrelia, the Renaissance of Lyme disease treatment, and challenge versus treatment protocols.

Thirty-five speakers will discuss Lyme disease science, natural and alternative protocols, hormonal care, psychological and emotional support, dental issues, and may other ares relevant to treating Lyme disease.  In addition to the day one speakers shown above, you will hear from Sarah Ballantyne, Dietrich Klinghardt, Amy Derksen, Isaac Eliaz, David A. Jernigan, and many more.

Chronic Lyme Disease Summit 2

We know many of you prefer to purchase a copy of the event and watch at your own speed. Own all of the expert talks to watch at your own pace (plus, your purchase helps to create more of these valuable health talks!)

The Chronic Lyme Disease Summit 2 will teach you about:
Symptoms (common and rare!)
Diagnosis and testing
Practical at-home health tips
Healing protocol explanations
And more!

The Chronic Lyme Disease Summit 2 is online and free from June 19-26, 2017!
Chronic Lyme Disease Summit 2

I’ll see you online at this educational summit!

Wayne Anderson, ND

P.S. It’s true, every purchase made helps us continue to reach people struggling to live healthier lives. I thank you in advance for your support.

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“Look of Lyme” Video Channel Launch at Under Our Skin

Look of Lyme
From Under Our Skin

What Does Your Lyme Look Like?

Look of Lyme is a new initiative by the makers of UNDER OUR SKIN to bring your personal stories of suffering and courage into the limelight. While the Internet and social media have exploded with personal videos, there is no place that serves as a repository and archive of the ever changing and growing landscape of Lyme disease. Look of Lyme changes that, offering a way to make the personal political by harnessing the power of crowdsourcing and media. Our individual stories create a collective story that cannot be dismissed! Also, as we begin to develop a third film in the UNDER OUR SKIN collection, Look of Lyme is a way we can screen for possible film subjects. After receiving your videos and possibly editing them for brevity, consistency and branding, we’ll present them on a new YouTube channel accessible to millions worldwide.

Go to the Look of Lyme webpage to get guidlines on how to film and submit your video.

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Announcement For Gathering Participants For Study Of The Needs Of Persons With Environmental Sensitivities

Women with Environmental Sensitivities

The James Madison University Environmental Sensitivities Research Team is inviting adults aged 21 and over who have experienced environmental sensitivities (chemical and/or electrical) to participate in on online study of how their needs are being met as they grow older with sensitivities.

If you are interested in participating, please click on the link below to see the consent form and learn more about the study. If you are unable to complete the survey online, you are welcome to request a hard copy that can be mailed to you. To request a hard copy please email gibsonpr@jmu.edu or call 540-568-6195 and leave a message with you name (clearly stated) and your complete address.

Thank you ahead to everyone who helps me with this study.

To take the survey online, copy this url into your browser:

http://jmu.co1.qualtrics.com/SE/?SID=SV_4YGd1uBrKkxx8nr

Pamela Gibson, Ph.D., Professor of Psychology
James Madison University, MSC 7704
Harrisonburg, VA 22807
540-568-6195

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Healthy St. Patrick’s Day Food!

Be sure to check the recipes for any ingredients that may be problematic for you. There are paleo style, vegie, dairy free, gluten free, and low carb options here. Find something to make the day special!

Round Up of Paleo Style Recipes for St. Patrick’s Day

One Pot Bacon Barised Lamb Stew

One Pot Bacon Braised Lamb Stew by Cotter Crunch

[Read more…]

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It’s Here! The GMA Patient Portal is Now Live

Good things are worth waiting for! It took a little longer than we planned, but the GMA Patient Portal is now up on the website. Secure messaging will make it easy to communicate and make changes in your appointments, update your address, your payment info, to upload labs or other documents, and to manage your prescriptions and get information on your treatment. Current patients can sign up now. If you have any problems signing on, contact your Medical Assistant for help.

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12:00 Midnight Deadline to Sign Up for 2017 Insurance Through HealthCare.gov

ACA Sign Up Deadline 2017Get 2017 Health Insurance coverage. Health Insurance Marketplace

Official site of the Affordable Care Act (ACA). Enroll now for 2017. See health coverage choices, ways to save today, how the law affects you.

HealthCare.gov

In California you can use Covered California. If you start your application at Covered California before midnight, you will have until February 4 to complete it.

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AIMS Surveys Now Going Out in Batches

Genes are ancestor based. Metabolites are how you are doing now.

Science in Service of HumanityIf you are curious to be updated on our research please check the Research News section on the SISOH website. This is the most up to date information. You can subscribe to the Sisoh blog by inputting your email in the subscription box on the sidebar.

We are sending out the Analyzing Individual Metabolomics Study (AIMS) survey emails in small batches. If you have signed up online or spoken to research coordinator Asha Baxter you are on the list for AIMS. Please be patient. *If you have a gmail account please check your spam or promotions email for our email.

Completion of the survey will add you to our list of potential study participants. Once we have enough participants for your age group, you will be given instructions on how to formally enroll in the study. All study participants will receive study updates and overall study results. Additionally, a metabolomic report of personal metabolomic results will be sent to a participant’s physician.

Please Donate to help us find answers to Chronic Illness. Every dollar counts. Donations to our non-profit GMRC are tax-deductible.

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Help Set the Lyme Research Agenda with Lymedisease.org Survey

Lyme Research AgendaToday, LymeDisease.org launches a survey of 25 research questions for the community to vote on and prioritize. The answers will be used to develop a research agenda for the Lyme community which will be publicized and used as a tool to give patients a voice in the funding of research. The ultimate goal is to ensure that research that matters to patients is funded.

Take the Survey

Read more at Lyme Policy Wonk

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Yoga Improves Memory and Brain Function in Older Adults, Study Finds

Published on the YogaU Wellness blog, the article below discusses a study which showed an increase in memory and brain function in older adults who did yoga. While GMA patients may not all be older, many still may suffer from memory and concentration issues which could benefit from yoga.

Yoga Center of Santa Rosa

Pam Fields of the Yoga Center of Santa Rosa teaching in her gentle yoga class. Pam also teaches a class for Parkinson’s patients.

If you are interested in trying it out, check out our Resources/Support Groups page on the GMA website to find a list of local and online classes in gentle and restorative yoga that would be possible for many patients.

Yoga Improves Memory and Brain Function in Older Adults, Study Finds
By: B Grace Bullock, PhD, E-RYT 500

Prolonged stress can have a deleterious effect on the brain, reducing your ability to think, plan and reason effectively. This is particularly true for the elderly. Now, a new study published in Biological Psychology finds that yoga may moderate the stress response and improve executive function in older adults, building on prior research that finds that yoga is good for your brain.

Neuroendocrine research finds that brain exposure to higher concentrations of cortisol – a key marker of stress – increases the risk for cognitive deficits as we age. Chronic stress magnifies this effect, placing undue wear and tear on the brain and the autonomic nervous system, and increasing the risk for disease.

Read More

Read the original study: Yoga practice improves executive function by attenuating stress levels

Find a review by the Harvard Medical School Health Publication of studies about yoga and the stress response: Yoga for Anxiety and Depression