An illness transmitted by a tick, Lyme disease is found in all 50 of the United States and many countries worldwide. sometimes the term "Lyme Disease" is used to indicate a complex illness that includes other diseases transmitted by ticks, such as Ehrlichia, Bartonella, Babesia, Rocky Mountain Spotted Fever, and others.

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Elizabeth Large Featured in Press Democrat Article on Lyme Disease

Lucia Montiel, 9, uses a wheelchair to move around her Sonoma coast home since being diagnosed with Lyme disease (John Burgess/The Press Democrat)

Lucia Montiel, 9, uses a wheelchair to move around her Sonoma coast home since being diagnosed with Lyme disease (John Burgess/The Press Democrat)

Lyme disease leaves victims frustrated, searching for answers

Excerpted from an article by MARTIN ESPINOZA
THE PRESS DEMOCRAT | May 18, 2017

Treating these infections is like working in the dark,” said Large, adding that ticks can cause multiple infections. “You’re looking to find the light switch. Hopefully, the more you treat, you start to get a clearer picture of the infections the patient has.

Although tick activity is high in the spring and early summer, ticks are active yearlong, Holbrook ( Sonoma County deputy health officer) said. County officials said Lyme disease is endemic in Sonoma County, with 81 cases between 2005 and 2014, which meets the surveillance case definition under CDC standards.

That figure, however, is a “gross underrepresentation” of the number of Lyme and associated diseases in the county, said Elizabeth Large, a naturopathic physician with Eric Gordon Medical Associates, a Santa Rosa-based practice that specializes in treating chronic disorders such as Lyme disease, arthritis and chronic fatigue syndrome.

Based on the volume of patients seen by her practice, Large said, the number of Lyme infections and associated co-infections during that 10-year period is probably in “the thousands.”

She said determining whether someone has Lyme disease is based on a clinical diagnosis, one that takes into account the totality of patients’ symptoms and their medical history. Earlier this week, Large, who has expertise in pediatric Lyme, saw Luccia for the first time at her medical office in northeast Santa Rosa. Luccia’s grandmother and mother discussed the once-active girl’s medical history, including her bout with the illness and the battery of tests and treatments she’s undergone since February.

“She sometimes can’t tell you what she’s had for breakfast,” Zablocki said.

Luccia was bit in the head by a tick in kindergarten in 2013, but the tick was not properly removed. Its body was removed, but the head was left attached, Zablocki said, adding that the girl was also bit by a tick last summer but that tick was removed.

In most cases, the western blacklegged tick must be attached for 36 to 48 hours before the Lyme disease bacterium can be transmitted, according to the CDC. The disease is caused by the bacterium Borrelia burgdorferi and typical symptoms include fever, headache, fatigue and a characteristic skin rash that looks like a bullseye.

Untreated, the infection can spread to joints, the nervous system and the heart. The CDC says Lyme disease is diagnosed through symptoms, the appearance of such things as a rash and a history of exposure to infected ticks.

After her examination of Luccia, Large said the girl’s varying symptoms pointed to both Lyme and a different infection caused by the bacterium Bartonella, and she changed up the mix of antibiotics.

Read entire article

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“Look of Lyme” Video Channel Launch at Under Our Skin

Look of Lyme
From Under Our Skin

What Does Your Lyme Look Like?

Look of Lyme is a new initiative by the makers of UNDER OUR SKIN to bring your personal stories of suffering and courage into the limelight. While the Internet and social media have exploded with personal videos, there is no place that serves as a repository and archive of the ever changing and growing landscape of Lyme disease. Look of Lyme changes that, offering a way to make the personal political by harnessing the power of crowdsourcing and media. Our individual stories create a collective story that cannot be dismissed! Also, as we begin to develop a third film in the UNDER OUR SKIN collection, Look of Lyme is a way we can screen for possible film subjects. After receiving your videos and possibly editing them for brevity, consistency and branding, we’ll present them on a new YouTube channel accessible to millions worldwide.

Go to the Look of Lyme webpage to get guidlines on how to film and submit your video.

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Wayne Anderson, ND at the Chronic Lyme Disease Summit 2

Online FREE from
June 19-26, 2017

Join Wayne Anderson, ND

online at the Chronic Lyme Disease Summit 2

June 19-26, 2017! – Webinar – Register for Free Now!

*more information on the summit available soon

Dr. Anderson will be speaking on Day 1, June 19. Don’t miss this opportunity to hear him speak about his unique understanding of treatment for Lyme disease and the coinfections seen with it.

A curious and dedicated clinician, Dr. Anderson is committed to the ongoing process of learning and teaching. In addition to his clinical practice, Dr. Anderson maintained his initial focus on teaching. For over 20 years he taught medical students at Touro Osteopathic Medical School, and supervised residents from Sutter Hospital and interns from the Physician Assistant programs in the clinic setting. He is also a popular speaker on the topics of Lyme disease and neurotoxin illness. He has spoken at conferences for the International Lyme and Associated Diseases Society (ILADS), the American College for Advancement in Medicine (ACAM),  Orthomolecular Health Medicine (OHM), and Lyme Induced Autism (LIA), as well as select private symposiums on CFIDS, Lyme, and Autism.

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Update on SISOH Metabolomics Research 4/6/17

Eric Gordon MD and Wayne Anderson ND at SISOH

Eric Gordon MD and Wayne Anderson ND – photo courtesy of the Press Democrat, Christopher Chung

From Eric Gordon, MD

Many of you are probably wondering where we are with the SISOH research. Good news is that Kelly Fox, previously one of the Medical Assistants at GMA, has come on as a full-time Research Coordinator! Kelly is very experienced in working with chronically ill patients, and we think you will find her a delight to work with.

Our ongoing CFS/ME studies are group studies working to develop an accepted group of biomarkers to define people with CFS/ME. We have enrolled all the patients in the replication study with Dr. Cheney, and hope to publish that in fall of 2017. [Read more…]

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GMA Welcomes Elizabeth Large, ND Back to Our Offices!

Elizabeth Large, NDBy Elizabeth Large, ND

Gordon Medical is delighted to have Elizabeth Large, ND back in our offices! Dr. Large is a board-certified Naturopathic doctor with 15 years clinical experience treating complex illness. She is trained as a primary doctor but her clinical emphasis is focused on treating complex disorders that might encompass the following: Chronic Lyme disease or infection, digestive disorders, chronic fatigue, mood disorders, allergies and endocrine imbalances. If you have seen numerous doctors for your medical condition without benefit, you are in the right place.

After many years of practice, Dr. Large began seeing patterns emerge among her patients, both pediatric and adult. Her patient population exhibited similar symptoms such as chronic fatigue, anxiety, depression, chronic digestive issues, high reactivity to foods and medications and other unusual symptoms. She discovered that many of her patients were suffering from chronic infections or neurotoxic illnesses such as Lyme disease, co-infections, mold and/or heavy metal toxicity. [Read more…]

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Help Set the Lyme Research Agenda with Lymedisease.org Survey

Lyme Research AgendaToday, LymeDisease.org launches a survey of 25 research questions for the community to vote on and prioritize. The answers will be used to develop a research agenda for the Lyme community which will be publicized and used as a tool to give patients a voice in the funding of research. The ultimate goal is to ensure that research that matters to patients is funded.

Take the Survey

Read more at Lyme Policy Wonk

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MyLymeData 3-month follow-up survey launched

MyLymeData

From Lorraine Johnson, JD, MBA at LYMEPOLICYWONK

Originally published on LymePolicyWonk on November 15, 2017

Last year, LymeDisease.org launched MyLymeData–a national patient-centered big data project. Today it is the largest study of Lyme patients ever conducted, with over 6,000 currently enrolled. Our goal is 10,000 participants. MyLymeData allows patients to pool their data to help find a cure.

This week we are rolling out MyLymeData’s three-month follow-up survey, which tracks patient symptoms, treatments, treatment response, and functional status on a quarterly basis. This survey holds the key to questions patients care about. What treatments work? Why do they work for some people and not others? [Read more…]

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LymeDisease.org News – What Congressional Record says about Lyme disease bill

The United States Senate is now in recess until November 14, which means nothing will happen before then regarding S. 1503, the Lyme and Tick-borne Disease Prevention, Education, and Research Act of 2015.

On September 28, five senators submitted remarks to be included in the Congressional Record regarding the bill: Richard Blumenthal (CT), Kelly Ayotte (NH), Kirsten Gillibrand (NY), Susan Collins (ME) and Mark Kirk (IL).

The senators stated why they are in support, and urged their fellow senators to join them.

(Click here to ask your senators to co-sponsor this bill.)

Read the full article

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Holistic Treatment of Lyme Disease

Nafysa Parpia, ND

Holistic Treatment of Lyme Disease

By Nafysa Parpia, ND

People experiencing a range of symptoms like fatigue, headaches, poor memory, inability to concentrate, depression, anxiety, recurrent flu-like symptoms, rashes, and a general sense of not feeling well may have conditions that are not always easily diagnosed by doctors. Lyme disease is one such illness.

People may have Lyme and not test positive for it; others who do test positive did not suspect it or can’t recall getting bitten by a tick. Lyme disease can overlap with other conditions such as chemical sensitivity, viral infections, bacterial infections and mold. As such, treatment for Lyme is complex.

[Read more…]

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ILADS Statement on CMS Proposed Rule Concerning Antibiotic Stewardship

FOR IMMEDIATE RELEASE:
August 26, 2016

Statement attributed to:
Board of Directors, International Lyme and Associate Diseases Society

The International Lyme and Associate Diseases Society (ILADS) has commented on the Proposed Rule of the Centers for Medicare & Medicaid Services, CMS-3295-P: “Medicare and Medicaid Programs: Hospital and Critical Access Hospital Changes to Promote Innovation, Flexibility, and Improvement in Patient Care” which appeared in the Federal Register (0938-AS21, June 16, 2016). Without further clarification, these regulations could limit or eliminate antibiotic treatment for the many patients who suffer from Lyme disease and other tick-borne infections. [Read more…]