Still Have Symptoms After Treatment for Babesia

Question: With a history of dysnomia related to babesia, although the babesia may be gone, I still have Neurally Mediated Hypotension, high BP (blood pressure), POTS (postural orthostatic tachycardia), temperature problems, sleep off and on, it often takes until 5 AM to fall asleep, 8 years post-function adrenal collapse.  Please explain the physiological dynamics of what is going wrong with the autonomic nervous system and the hypo-pituitary adrenal system.

Answer from GMA Staff:

We have written about factors predisposing to infection, the “total load” and the cycle of maladaptive responses that can follow Lyme and tick-borne diseases.  In fact, these problems also are common among chronic fatigue (syndrome or not) patients, people suffering from long-term stress and others who are chronically-ill.

Our writer comments that after the infection has been treated, his (let’s assume) adrenal, autonomic, and other symptoms persist. [Read more…]


Do Emotions Impact Lyme Disease?


Do emotional boundaries play a key role in the development of Lyme?

Dr. eric GordonAnswer from Dr. Eric Gordon:

Emotions play a role in all illness.  The immune system is not separate from our emotions.  Neurotransmitters (such as serotonin, dopamine, and norepinephrine) also act on white blood cells.  Many cytokines, the chemicals that white blood cells release to communicate with each other, also act in the nervous system.  The division between emotional states and physical states is a function of our mind’s need to categorize the world.  It is not an accurate description of the world.

With this being said, we will return to the question:  Do your emotional boundaries play a role in the development of Lyme?  I think as suggested above, it will play a role. However, there are many people who have the inability to set interpersonal boundaries, but that is not enough to let Lyme infections overwhelm us.  Most of us are emotionally wounded in some way, and Lyme and the coinfections will exacerbate our underlying tendencies, but millions of us who have had trouble saying “no,” myself included, have successfully cleared Lyme.  Emotions and proper boundaries are important, but to label them as key in the development of chronic Lyme or any chronic illness is to misunderstand the rich interrelationships of life.  They are a problem for all illness and are permissive but not causative.

Dr. Eric Gordon is the founder of  Gordon Medical Associates. What Dr. Gordon emphasizes is listening to his patients. “I believe my patients. Their description of what is going on in their body is the most accurate way we have to assess what is going on with them. I interpret the information they present, and blend it with laboratory results and imaging and other tests to determine a protocol that is customized to their condition.”


Neurologic Lyme Disease

The following question and answer are from two Lyme researchers who represent points of view in a Point/Counterpoint discussion. To read the complete article click on the links provided.

Question: How will research on neurologic Lyme disease need to change to to identify better treatments?

Dr. John HalperinAnswer from Dr. John Halperin:

Distinguish Between Clinical Constructs

Four clinical constructs are commonly attributed to nervous system Lyme disease, but only one of these represents nervous system infection with Borrelia burgdorferi, also known as neuroborrelliosis. However, there are legitimate and important research questions regarding each of the four.

Neuroborrelliosis manifests as lymphocytic meningitis, multifocal inflammation of nerves and nerve roots, and – very rarely- multifocal inflammation of the central nervous system. …

to read the complete article click here

Dr. Halperin is a professor of neurology at Mount Sinai School of Medicine, New York, and is chair of the department of neurosciences at Overlook Hospital in Summit, New Jersey.  He has served as expert witness defending physicians accused of failure to diagnose nervous system Lyme disease.

How will research on neurologic Lyme disease need to change to to identify better treatments?

Dr. Brian FallonAnswer from Dr. Brian Fallon:

Although progress has been made in our  understanding of  neurologic Lyme disease, important questions and unmet needs remain, particularly with respect to diagnostic tests and the cause and treatment of chronic sequale.

The following five steps will further advance our understanding:

  • Conduct a large prospective study of neurologic Lyme disease, which may clarify the incidence of chronic symptoms after standard treatment and identify risk factors that influence relapse vs. recovery.
  • Apply newly developed technologies to identify better diagnostics and biomarkers …

to read the complete article click here

Dr. Brian Fallon is director of the Lyme and Tick Borne Disease Research Center and professor of clinical psychiatry at Columbia University,  New York. The center received a small grant last year from the Lyme Disease Association toward developing a repository for Lyme specimens.


When Treatment Doesn’t Work

Question:  What if you see no response from numerous treatments?  NO Herz, no increase or decrease of symptoms at all.   I have tested positive for Lyme and 4 co-infections.

Dr. Eric GordonAnswer from Dr. Eric Gordon:

If you have tested positive for Lyme disease and multiple coinfections, and have had no response to antibiotic therapy, there are several possibilities.  The first is that the key infection may not have been treated aggressively enough, or perhaps right on the border.  Sometimes we find that the order in which the infections are treated will affect the outcome of treatment.  Other possibilities include a viral infection, or mold or other toxins that are affecting your immune response—or in fact creating your symptoms.

Many times we see antibodies to multiple tick-borne infections; also to multiple viruses; as well as to mycoplasma and chlamydia and pneumonia.  When we see this pattern, the question is:  Which is the important infection?—or are we just dealing with an up-regulated immune response caused by multiple infections that the body has seen, and perhaps even dealt with?  This is an issue that Dr. Karen Newell is investigating. Hopefully soon we will have more information, and the ability to treat the situation where these immune cells—these are the cells that produce antibody—are continuously being stimulated.  When there is a lot of B-cell activity, there will also be activity of the rest of the immune system, and production of cytokines, which can produce symptoms that mimic the tick-borne illnesses. Read more about Dr. Newell’s research here. [Read more…]


More On Highly Sensitive Patients

Question: What is your experience with hypersensitive patients who tend to react to many treatments both herbal and chemical?

Question: What kind of connection do you see, if any, with an individual’s belief system and the function or susceptibility of their immune system? 

Answers from GMA Staff:

We need first to understand the patient’s “total load.”  You remember hearing about the straw that broke the camel’s back?  If the camel weren’t already loaded to his maximum, that little straw would have done no harm whatsoever.  Like the proverbial camel, people in our society carry varying amounts of many types of stressful loads every day.  However, we should consider more than just their load.

The “camel’s” health is also an important factor.  Dromedaries that are hypothyroid, malnourished, have bad bones, muscle problems, suffer sleep deprivation or are otherwise ill can’t carry as much as healthy camels.  Buff, healthy adults handle health challenges far better than the physiologically weaker ones.

[Read more…]


Treating Highly Sensitive Patients

Question: How do you treat patients with highly sensitive bodies, I.E., people who may develop impairment due to high or even normal dosage of medication?

Answer from Dr. AzRa MaEl:

Highly sensitive patients often fall through the cracks in the medical system, even amongst Lyme literate doctors. Sensitive patients need treatment regimens tailored specifically to them, and doctors who are sensitive to these issues.  Here are some general treatment principles that work for people.

1. You must build up and support their systems, with specific nutritional support and hormone support if needed.

2. You must pay attention to the function of their detox system – i.e. the Gastrointestional tract, liver, kidneys, lymphatics, etc – because many sensitive patients accumulate toxins due to genetic impairments in detoxification.

3. You must detect and eliminate toxic environmental exposures, which could include mold, heavy metals, organic toxins, food allergies, etc.

4. You must treat the dominant infection first, which is often a co-infection of Lyme disease.

5. Often you must start with gentle treatments that could include herbs, homeopathics, etc.

Once all these issues are dealt with, sensitive patients often become a lot less sensitive.

AzRa MaEl, MD was educated at Duke University School of Medicine and the University of California San Francisco Family Medicine Residency in Santa Rosa. He specializes in innovative treatment strategies for persistent complex illness.  In addition to antibiotics and other allopathic treatments, nutritional support, lifestyle, and emotional factors are considered a vital part of recovery for all patients.


Therapies for Lyme Disease

Answers from Gordon Medical Staff

Question:  What is your opinion on the drug Naltrexone to help improve immune function?

Naltrexone is increasingly being used to treat autoimmune diseases, such as Multiple Sclerosis, Crohn’s disease, and Rheumatoid Arthritis. However, the phrase “improve immune function” is a bit more vague than many people realize. The immune system as a whole is very complex. Improvement in one area of immune function may not generalize, so I don’t see Low Dose Naltrexone (commonly abbreviated LDN) as having universal value here. I have seen improvement in my Lyme patients in the areas of cognitive difficulties (brain fog, impaired focus, memory, and concentration), and improvement in some patients with generalized pain. The usual dosage of LDN is 3-4.5mg taken at bedtime, but some of my more sensitive patients cannot tolerate it at all, even at very low doses. Since Naltrexone is a narcotic antagonist  (we use it in much larger doses to treat heroine overdoses), it can not be taken safely by patients on narcotic medications.

[Read more…]


What Can You Do For “Post Lyme Disease”?

Answers from the Gordon Medical Staff

Question: In treating Post Lyme Disease, what strategies do you recommend after long-term oral or IV antibiotics?

The term “Post Lyme Syndrome” (PLS) is most often used by conventional doctors who believe any Lyme symptoms persisting after 4-6 weeks of antibiotics are caused not by lingering infection, but rather by autoimmune-like inflammation that was triggered by the infection. Post Lyme Syndrome does exist, but one must be careful to distinguish it from the more common scenario of partially treated Lyme disease and co-infections. If one has thoroughly treated Lyme AND all co-infections (often co-infections are missed)until there is no further improvement on antibiotics, and no relapse after stopping antibiotics, then one may be dealing with a true PLS.

Some of our patients with PLS have seen improvements with immune modulating therapies (such as low dose naltrexone (LDN), particle rich plasma, etc), detoxification therapies, nutritional therapies and other treatments. And many people who have finished a long course of antibiotics choose to go on herbal medicines or use electromagnetic therapies for months to years afterwards to prevent recurrence of the tick borne infection symptoms. There is no way to know for sure if Lyme disease or other chronic bacterial infections can ever be completely eliminated, so some sort of a maintenance regimen is often used.


Exercising With Lyme Disease

Question: Dr. Burrascano says to do no aerobic exercise, what about moderate walking. Is it good for the spirit?

Dr. Burrascano’s advice about avoiding aerobic exercise does not preclude long walks. He is warning against pushing yourself to get the endorphin rush that many athletic people love. Walking is fine as long as you are not exhausted when you finish, or do not feel more tired the next day. Limit activity to a level that doesn’t wear you out. Do not use your memory of what you used to do to guide you. Be aware of what feels good in your present condition. A stressed body will not heal from a chronic infection. If your walk is all you can do for that day, you did too much. Start slowly and incrementally. Increase by 1-3 minutes as you are able and you will regain your health. Push yourself, and you will stay stuck in the exertion and crash pattern. This inhibits immune function and adrenal recovery. Slow but regular physical exercise will increase muscle mass and help modulate your inflammatory response.

Question: Can I walk every day if I am able to besides doing the exercise that Dr. Burrascano suggested?

Yes. I agree with Dr. Burrascano that exercise is important in the healing process. I suspect that he and I would agree that if you exercise to the point of feeling exhausted afterwards, and that if that exhaustion lasts a day or more, (what we refer to as post exertional malaise), that amount of exercise is not healthy for that individual. The key point here is that a patient with Lyme disease is using so much energy to fight their infection(s) that they must no overdo in exercise, or they risk compromising the healing process. Having said that, in addition to the specific program recommended by Dr. Burrascano, I am a proponent of any form of low impact exercise that is well tolerated. It’s all about balance, and moderation, and listening to your body about what you can and can’t do. As long as you don’t overdo, exercise can be quite beneficial.

Question: Dr. Burrascano says to do no aerobic exercise, what about moderate walking. It is good for the spirit?

The point of this message is that aerobic exercise can temporarily deplete the immune system, which can make Lyme disease harder to treat. This lowered immunity is demonstrated by the well documented fact that marathon runners have increased susceptibility to viruses in the days following races. Some people with milder cases of Lyme do feel fine after aerobic exercise. Listen to your body and speak to your doctor. If you feel invigorated after aerobic exercise, then it may be fine for you.  If you feel more tired or stressed after aerobic exercise, then it probably is not serving you. There are many other kinds of gifts for the spirit. If aerobic exercise makes you sick, then it may be better to find a different kind of uplifting activity.

Dr Eric Gordon practices in Santa Rosa, California at Gordon Medical Associates. What Dr. Eric Gordon emphasizes is listening to his patients. “I believe my patients. Their description of what is going on in their body is the most accurate way we have to assess what is going on with them. I interpret the information they present, and blend it with laboratory results and imaging and other tests to determine a protocol that is customized to their condition.”


Lyme Disease and Parkinson’s


I have Lyme, and have received extensive treatment. I now have been diagnosed with Parkinson’s, which does respond to dopamine. Can Lyme imitate Parkinson’s?

Answer from Dr. Eric Gordon:

Lyme can cause Parkinson’s in a person with the right genetic and environmental risks and exposures. Parkinson’s is probably a result of inflammation in the brain resulting in destruction of dopamine producing cells.

Treating the Lyme will help reduce inflammation. If the Lyme is gone dormant or quiescent, and the Parkinson symptoms persist, treatment with IV phospholipids and glutathione will help the Parkinson’s. Multiple other supportive measures are useful, including structural and nutritional treatments to reestablish a normal balance of immune function. Heavy metal toxicity is often an inciting cause of Parkinson’s and a cause of failure of antibiotic therapy in chronic Lyme.

There is no one treatment for persistent Lyme. Long term antibiotics may be needed, especially for severe neurologic symptoms. You need to have your Lyme status reevaluated to make a better decision on what to do next.

Dopamine is not a long term solution for Parkinson’s. It is an effective band-aid.

Question: Can Lyme Imitate Parkinson’s?

The short answer is yes. Lyme can cause or imitate many different types of problems in the nervous system. It can cause or worsen tremors, movement disorders, seizures, cognitive problems, paralysis of specific nerves, etc. Parkinson’s is not primarily an inherited condition, but is caused by inflammatory factors, toxins, and other triggers in the external and internal environment. We have seen patients with Parkinson’s disease whose symptoms have improved, sometimes dramatically, with Lyme treatment and other patients that do not improve much with treatment.

Dr Eric Gordon practices in Santa Rosa, California at Gordon Medical Associates. What Dr. Eric Gordon emphasizes is listening to his patients. “I believe my patients. Their description of what is going on in their body is the most accurate way we have to assess what is going on with them. I interpret the information they present, and blend it with laboratory results and imaging and other tests to determine a protocol that is customized to their condition.”