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Dysauntonomia, Biotoxins, and Lyme

Question:

I have a long term lyme patient who has recovered from most of her lyme symptoms with the exception of intermittent hypo tension 80/40 with  pulse in the 40’s known as autonomic insufficiency or pots or dysautonomia.  For years when she has a lyme flare she will experience strabismus.  I am convinced that ocular damage is from the lyme and is part of the etiology for her flares as well as the  dysautonomia. None the less researching this subject quickly makes one realize that it is complex with many suspected etiologies.  I have started her on florinef .1 mg for now.  So anyone have any other pearls of wisdom?  She has been on cortef for years low dose.  Her endocrinologist did not check with me and also put her on cortef so she got a 30 mg dose for a month or so, of course she felt great.   I have had her consult with a cardiologist, endocrinologist as well as neurologist.  They just kind of threw up their hands especially with a ” lyme dx” in the mixture.  I will consult next week again with her neurologist in an effort  to co-manage this case but may get left holding the bag as I usually do in  trying to treat lyme patients.   Anyway I would appreciate tips on treating this common problem with our lyme patients. [Read more…]